Part, Chapter, Paragraph
1 II, 5. 3.Acr| Acronyms~ ~CR~Cancer Registry~ENCR~European Network of
2 II, 5. 3. 2| European recognised cancer registry (Luxembourg, Greece, Romania,
3 II, 5. 3. 2| Europe-wide coordination.~ ~Cancer Registry roles and functions (Zanetti
4 II, 5. 3. 2| minimal role of any cancer registry is the provision of timely
5 II, 5. 3. 2| States, severe constraints on registry operation have been imposed
6 II, 5. 3. 2| reasons for insufficient registry activity in the EU. The
7 II, 5. 3. 2| all of the above, a cancer registry or a registry network should
8 II, 5. 3. 2| a cancer registry or a registry network should be established
9 II, 5. 3. 2| create harmonised cancer registry procedures and efficient
10 II, 5. 3. 2| care improvement;~· cancer registry provide standardized data
11 II, 5. 3. 3| the Czech National Cancer Registry were provided ( 8% export
12 II, 5. 3. 3| provided ( 8% export from registry database with 100% coverage).
13 II, 5. 3. 9| in the EUROCARE-3 cancer registry areas. Ann Oncol 14:v28-v40.~ ~
14 II, 5. 4. 2| BMI 30 kg/m2~14~ ~HES/HIS Registry~II Epidemiology of diabetes~ ~ ~
15 II, 5. 4. 2| population 0–14 years~12~HES/HIS Registry~Prevalence of diabetes mellitus/
16 II, 5. 4. 2| general population~12~National Registry~Annual death rate in the
17 II, 5. 4. 2| Standard Population~12~National Registry~Acronyms:~ICD 9: Diabetes
18 II, 5. 5. 3| Danish Multiple Sclerosis Registry (DMSR) has collected MS
19 II, 5. 5. 3| including the National Patient Registry (Koch-Henriksen et al, 2001).
20 II, 5. 5. 3| Koch-Henriksen et al, 2001). The Registry is estimated to be 90% complete,
21 II, 5. 5. 3| Denmark’s Centralised Civil Registry, including the National
22 II, 5. 5. 3| including the National Registry of Causes of Death, and
23 II, 5. 5. 3| Death, and the Danish Twin Registry. The DMSR has proved to
24 II, 5. 5. 3| National Multiple Sclerosis Registry was established in 2001
25 II, 5. 5. 3| 1973 and 1993.~Based on a registry system established in the
26 II, 5. 5. 3| ascertainment, i.e. for the use of registry systems and repeated assessments
27 II, 5. 5. 3| nation-wide surveys and registry systems. However, the tendency
28 II, 5. 5. 3| Götze U, et al (2005): [MS registry in Germany—design and first
29 II, 5. 5. 3| Danish Multiple Sclerosis Registry. Acta Neurol Scand 78:369–
30 II, 5. 5. 3| Danish Multiple Sclerosis Registry: a 50-year follow-up. Mult
31 II, 5. 5. 3| Danish Multiple Sclerosis Registry. History, data collection
32 II, 5. 5. 3| National Multiple Sclerosis registry—a resource for clinical
33 II, 5. 5. 3| Danish Multiple Sclerosis Registry~EDSS~Expanded Disability
34 II, 5. 5. 3| were setting up a European registry of clinically well defined
35 II, 5. 7. 2| adults and on the data of the Registry of the European Renal Association -
36 II, 5. 7. 2| for ESRD to the ERA-EDTA Registry for international comparison.
37 II, 5. 7. 2| within one European ERA-EDTA Registry facilitated the comparisons
38 II, 5. 7. 2| methodology.~ ~The ERA-EDTA Registry (http://www.era-edta-reg.
39 II, 5. 7. 2| These are published in the Registry annual reports together
40 II, 5. 7. 2| countries. In addition, the Registry performs more focused studies
41 II, 5. 7. 3| mentioned population-based registry in Italy (Italkid) have
42 II, 5. 7. 3| in other areas (UK Renal Registry, 2003).~ ~Prevalence~ ~For
43 II, 5. 7. 3| Data in a population-based registry in Italy including all people <
44 II, 5. 7. 3| Sixth Annual Report UK Renal Registry, 2003; Warady and Chadha,
45 II, 5. 7. 3| and Chadha, 2007; ERA-EDTA Registry, 2005). Also within Europe
46 II, 5. 7. 4| to data from the UK Renal Registry (UK Renal Registry, 2003),
47 II, 5. 7. 4| Renal Registry (UK Renal Registry, 2003), the prevalence of
48 II, 5. 7. 5| compulsory.~· The UK Renal Registry monitors the quantity and
49 II, 5. 7. 5| England & Wales through the UK registry, while NHS Quality Improvement
50 II, 5. 7. 5| Dialysis- and Transplantation Registry (OEDTR) shall take care
51 II, 5. 7. 5| dialysis treatment. The registry of patients (i.e. The Statistical
52 II, 5. 7. 5| promoted by the ERA-EDTA registry and co-funded by the European
53 II, 5. 7. 6| umbrella of the ERA-EDTA registry, most of the national and
54 II, 5. 7. 7| 17(6):1695-702.~ERA-EDTA Registry (2005): 2005 Annual Report.
55 II, 5. 8. 3| analysis of the Danish Patient Registry for patients admitted with
56 II, 5. 11. 3| Italy, the Skin Cancer Registry calculated (for the period
57 II, 5. 11. 3| 1995, the Slovakian Cancer Registry registered 38 629 cases
58 II, 5. 15. 3| not been recorded in the registry. A more extended prevalence
59 II, 5. 15. 3| minimum estimates, since the registry system has several limitations.
60 II, 9. 1. 2| has been performed ) and registry factors (e.g. specificity
61 II, 9. 1. 2| approximately 3 euro per birth in a registry area, or 1 euro per birth
62 II, 9. 1. 2| b) the potential to link registry cases to death notifications
63 II, 9. 1. 2| information across Europe. Each registry follows national practice
64 II, 9. 1. 2| Anomalies", EUROCAT Central Registry, University of Ulster. [ww l]~
65 II, 9. 1. 2| Europe". EUROCAT Central Registry, University of Ulster. Avaliable
66 II, 9. 1. 2| Europe", EUROCAT Central Registry, University of Ulster.[www l]~
67 II, 9. 1. 2| Anomalies", EUROCAT Central Registry, University of Ulster, ISBN
68 II, 9. 1. 2| Regions", EUROCAT Central Registry, University of Ulster; University
69 IV, 11. 5. 2| University ): h ERA-EDTA Registry: htt European Liver Transplant
70 IV, 11. 5. 2| European Liver Transplant Registry: htt International Islet
71 IV, 11. 5. 2| International Islet Transplant Registry: htt Italian Dyalisis and
72 IV, 11. 5. 2| Dyalisis and Transplant Registry (RIDT): ht ISHLT International
73 IV, 11. 5. 2| ISHLT International Registry for Heart and Lung Transplantation: htt
74 IV, 11. 5. 2| Spanish Bone Marrow Donors Registry (REDMO): ht Spanish Liver
75 IV, 11. 5. 2| Spanish Liver Transplant Registry: htt DOPKI: htt ALLIANCE-O: htt
76 IV, 11. 5. 5| and transplant activity registry for delivering information
77 IV, 11. 5. 5| goals are: create protocols, Registry, implement methodology,
78 IV, 11. 5. 6| the creation of a European registry on organs, cells and tissues
79 IV, 12. 2 | States, severe constraints on registry operation have been imposed
80 IV, 12. 10 | information see e. g. German Registry for Somatic Gene-Transfer
81 IV, 12. 10 | products on the market~National registry of biocide products: htt ~
82 Key, Ap5. 0. 0| refractive~register~registries~registry~rehabilitation~reimbursement~
