Part,  Chapter, Paragraph

 1   II,     5.  3.Acr|                Acronyms~ ~CR~Cancer Registry~ENCR~European Network of
 2   II,     5.  3.  2|          European recognised cancer registry (Luxembourg, Greece, Romania,
 3   II,     5.  3.  2|  Europe-wide coordination.~ ~Cancer Registry roles and functions (Zanetti
 4   II,     5.  3.  2|          minimal role of any cancer registry is the provision of timely
 5   II,     5.  3.  2|       States, severe constraints on registry operation have been imposed
 6   II,     5.  3.  2|            reasons for insufficient registry activity in the EU. The
 7   II,     5.  3.  2|          all of the above, a cancer registry or a registry network should
 8   II,     5.  3.  2|              a cancer registry or a registry network should be established
 9   II,     5.  3.  2|            create harmonised cancer registry procedures and efficient
10   II,     5.  3.  2|          care improvement;~· cancer registry provide standardized data
11   II,     5.  3.  3|           the Czech National Cancer Registry were provided ( 8% export
12   II,     5.  3.  3|           provided ( 8% export from registry database with 100% coverage).
13   II,     5.  3.  9|            in the EUROCARE-3 cancer registry areas. Ann Oncol 14:v28-v40.~ ~
14   II,     5.  4.  2|           BMI 30 kg/m2~14~ ~HES/HIS Registry~II Epidemiology of diabetes~ ~ ~
15   II,     5.  4.  2|    population 014 years~12~HES/HIS Registry~Prevalence of diabetes mellitus/
16   II,     5.  4.  2|      general population~12~National Registry~Annual death rate in the
17   II,     5.  4.  2|     Standard Population~12~National Registry~Acronyms:~ICD 9: Diabetes
18   II,     5.  5.  3|           Danish Multiple Sclerosis Registry (DMSR) has collected MS
19   II,     5.  5.  3|      including the National Patient Registry (Koch-Henriksen et al, 2001).
20   II,     5.  5.  3|    Koch-Henriksen et al, 2001). The Registry is estimated to be 90% complete,
21   II,     5.  5.  3|         Denmark’s Centralised Civil Registry, including the National
22   II,     5.  5.  3|              including the National Registry of Causes of Death, and
23   II,     5.  5.  3|          Death, and the Danish Twin Registry. The DMSR has proved to
24   II,     5.  5.  3|         National Multiple Sclerosis Registry was established in 2001
25   II,     5.  5.  3|           1973 and 1993.~Based on a registry system established in the
26   II,     5.  5.  3|  ascertainment, i.e. for the use of registry systems and repeated assessments
27   II,     5.  5.  3|             nation-wide surveys and registry systems. However, the tendency
28   II,     5.  5.  3|          Götze U, et al (2005): [MS registry in Germanydesign and first
29   II,     5.  5.  3|           Danish Multiple Sclerosis Registry. Acta Neurol Scand 78:36930   II,     5.  5.  3|           Danish Multiple Sclerosis Registry: a 50-year follow-up. Mult
31   II,     5.  5.  3|           Danish Multiple Sclerosis Registry. History, data collection
32   II,     5.  5.  3|         National Multiple Sclerosis registry—a resource for clinical
33   II,     5.  5.  3|           Danish Multiple Sclerosis Registry~EDSS~Expanded Disability
34   II,     5.  5.  3|          were setting up a European registry of clinically well defined
35   II,     5.  7.  2|       adults and on the data of the Registry of the European Renal Association -
36   II,     5.  7.  2|            for ESRD to the ERA-EDTA Registry for international comparison.
37   II,     5.  7.  2|        within one European ERA-EDTA Registry facilitated the comparisons
38   II,     5.  7.  2|         methodology.~ ~The ERA-EDTA Registry (http://www.era-edta-reg.
39   II,     5.  7.  2|          These are published in the Registry annual reports together
40   II,     5.  7.  2|         countries. In addition, the Registry performs more focused studies
41   II,     5.  7.  3|          mentioned population-based registry in Italy (Italkid) have
42   II,     5.  7.  3|            in other areas (UK Renal Registry, 2003).~ ~Prevalence~ ~For
43   II,     5.  7.  3|          Data in a population-based registry in Italy including all people <
44   II,     5.  7.  3|        Sixth Annual Report UK Renal Registry, 2003; Warady and Chadha,
45   II,     5.  7.  3|          and Chadha, 2007; ERA-EDTA Registry, 2005). Also within Europe
46   II,     5.  7.  4|           to data from the UK Renal Registry (UK Renal Registry, 2003),
47   II,     5.  7.  4|            Renal Registry (UK Renal Registry, 2003), the prevalence of
48   II,     5.  7.  5|          compulsory.~· The UK Renal Registry monitors the quantity and
49   II,     5.  7.  5|      England & Wales through the UK registry, while NHS Quality Improvement
50   II,     5.  7.  5|       Dialysis- and Transplantation Registry (OEDTR) shall take care
51   II,     5.  7.  5|             dialysis treatment. The registry of patients (i.e. The Statistical
52   II,     5.  7.  5|            promoted by the ERA-EDTA registry and co-funded by the European
53   II,     5.  7.  6|            umbrella of the ERA-EDTA registry, most of the national and
54   II,     5.  7.  7|            17(6):1695-702.~ERA-EDTA Registry (2005): 2005 Annual Report.
55   II,     5.  8.  3|      analysis of the Danish Patient Registry for patients admitted with
56   II,     5. 11.  3|              Italy, the Skin Cancer Registry calculated (for the period
57   II,     5. 11.  3|          1995, the Slovakian Cancer Registry registered 38 629 cases
58   II,     5. 15.  3|            not been recorded in the registry. A more extended prevalence
59   II,     5. 15.  3|        minimum estimates, since the registry system has several limitations.
60   II,     9.  1.  2|            has been performed ) and registry factors (e.g. specificity
61   II,     9.  1.  2| approximately 3 euro per birth in a registry area, or 1 euro per birth
62   II,     9.  1.  2|            b) the potential to link registry cases to death notifications
63   II,     9.  1.  2|     information across Europe. Each registry follows national practice
64   II,     9.  1.  2|         Anomalies", EUROCAT Central Registry, University of Ulster. [ww l]~
65   II,     9.  1.  2|            Europe". EUROCAT Central Registry, University of Ulster. Avaliable
66   II,     9.  1.  2|            Europe", EUROCAT Central Registry, University of Ulster.[www l]~
67   II,     9.  1.  2|         Anomalies", EUROCAT Central Registry, University of Ulster, ISBN
68   II,     9.  1.  2|           Regions", EUROCAT Central Registry, University of Ulster; University
69   IV,    11.  5.  2|            University ): h ERA-EDTA Registry: htt European Liver Transplant
70   IV,    11.  5.  2|           European Liver Transplant Registry: htt International Islet
71   IV,    11.  5.  2|      International Islet Transplant Registry: htt Italian Dyalisis and
72   IV,    11.  5.  2|             Dyalisis and Transplant Registry (RIDT): ht ISHLT International
73   IV,    11.  5.  2|                 ISHLT International Registry for Heart and Lung Transplantation: htt
74   IV,    11.  5.  2|          Spanish Bone Marrow Donors Registry (REDMO): ht Spanish Liver
75   IV,    11.  5.  2|            Spanish Liver Transplant Registry: htt DOPKI: htt ALLIANCE-O: htt
76   IV,    11.  5.  5|             and transplant activity registry for delivering information
77   IV,    11.  5.  5|        goals are: create protocols, Registry, implement methodology,
78   IV,    11.  5.  6|          the creation of a European registry on organs, cells and tissues
79   IV,    12.  2    |       States, severe constraints on registry operation have been imposed
80   IV,    12. 10    |        information see e. g. German Registry for Somatic Gene-Transfer
81   IV,    12. 10    |     products on the market~National registry of biocide products: htt ~
82  Key,   Ap5.  0.  0|      refractive~register~registries~registry~rehabilitation~reimbursement~