Part,  Chapter, Paragraph

 1    I,     2. 10.  4|        patient records and central registries, tracking and tracing of
 2   II,     5.  3.Acr|         European Network of Cancer Registries~ESMO~European Society for
 3   II,     5.  3.  2|            Population-based cancer registries (CR) collect data on all
 4   II,     5.  3.  2|       private hospitals, screening registries, other CRs, primary care
 5   II,     5.  3.  2|          from networks of regional registries. While European cancer survival
 6   II,     5.  3.  2|  programmes: a number of EU cancer registries already contribute to the
 7   II,     5.  3.  2|           About one hundred cancer registries operate in Europe today,
 8   II,     5.  3.  2|        consequence, several cancer registries closed down as in the former
 9   II,     5.  3.  2|         the flow of data to cancer registries also in the UK (2000). In
10   II,     5.  3.  2|          UK (2000). In other cases registries are prevented from linking
11   II,     5.  3.  2|   monitoring across Europe. Cancer Registries should be further developed
12   II,     5.  3.  2|         highlight that:~ ~· cancer registries are necessary for cancer
13   II,     5.  3.  2|            across Europe;~· cancer registries are essential to implement
14   II,     5.  3.  2|           European Union;~· cancer registries are unique providers of
15   II,     5.  3.  2|         population level;~· cancer registries need to be maintained and
16   II,     5.  3.  2|            and supported;~· cancer registries need ad-hoc national privacy
17   II,     5.  3.  2| restricting legislations;~· cancer registries should be recognised a role
18   II,     5.  3.  2|         projects connecting cancer registries are the best tools for the
19   II,     5.  3.  2|         European Network of Cancer Registries: ENCR is concerned with
20   II,     5.  3.  2|          promote the use of cancer registries in cancer control, health-care
21   II,     5.  3.  2|           care, national societies/registries and guidelines on cancer.
22   II,     5.  3.  6|            population-based cancer registries on patients survival in
23   II,     5.  3.  6|            regional (local) cancer registries. These can be used as proxy-older
24   II,     5.  3.  6|       analysed data from 83 cancer registries in 23 European countries
25   II,     5.  3.  6|          47 of the European cancer registries participating in the EUROCARE-4
26   II,     5.  3.  7|            population-based cancer registries, all of which will play
27   II,     5.  4.  2|           1. National and regional registries~ ~The construction of population-based
28   II,     5.  4.  2|     population ~15~HIS/HES/SPSN/RS Registries~IV Epidemiology of complications~ ~ ~
29   II,     5.  4.  2|        blindness~4~HIS/HES/SPSN/RS Registries~Annual incidence of dialysis
30   II,     5.  4.  2|      population~11~HIS/HES/SPSN/RS Registries~Prevalence (stock) of dialysis/
31   II,     5.  4.  2|      population~11~HIS/HES/SPSN/RS Registries~Annual death rate in patients
32   II,     5.  4.  2|     independent blindness national registries, where blindness is defined
33   II,     5.  5.  3|         regard to lacking national registries for psychiatric disorders
34   II,     5.  5.  3|           lack of psychiatric case registries in most of the European
35   II,     5.  5.  3|           not based on psychiatric registries -do not provide information
36   II,     5.  5.  3|           illnesses, detailed case registries (which are only available
37   II,     5.  5.  3|          regional population-based registries.~ ~ ~
38   II,     5.  5.  3|           Europe”~Population-based registries provide relevant information
39   II,     5.  7.  1|         are collected by the renal registries in Europe. Although rare,
40   II,     5.  7.  2|          of EU Member States renal registries are able to provide complete
41   II,     5.  7.  2|           Member States have renal registries in development that will
42   II,     5.  7.  2|            of development of renal registries hampered comparisons across
43   II,     5.  7.  2|     national and/or regional renal registries in Europe and countries
44   II,     5.  7.  2|           on RRT were used from 42 registries in 29 countries. National
45   II,     5.  7.  2|        National and regional renal registries including individual patient
46   II,     5.  7.  2|           of death are registered. Registries collecting aggregated data
47   II,     5.  7.  2|        national and regional renal registries and the completeness of
48   II,     5.  7.  2|            1996-2000 from 16 renal registries in 9 EU-15 Member States (
49   II,     5.  7.  6|        national and regional renal registries in EU Member States have
50   II,     5.  7.  6|      records and by bringing renal registries in development up to high
51   II,     5. 11.  2|            of independent European registries of patients suffering from
52   II,     5. 11.  3|           per 100,000. Many cancer registries probably underestimate the
53   II,     5. 15.  2|           data from a few regional registries recently established in
54   II,     5. 15.  2|            even more limited. Most registries, cohorts and observatories
55   II,     5. 15.  2|      available. Orphanet lists 250 registries in Europe which are dedicated
56   II,     5. 15.  2|            or a group of RD. These registries may be in a position to
57   II,     5. 15.  3|          by data from RD patientsregistries.~ ~Today, most rare diseases
58   II,     5. 15.  3|          Today, most rare diseases registries monitor a single disease
59   II,     5. 15.  3|       implemented population-based registries. The observed prevalence
60   II,     5. 15.  3|            provided by the Italian registries, 5 per 1000, can only be
61   II,     5. 15.  3|          Europe (dates of national registries, prices, reasons for unavailability,
62   II,     9.  1.  2|            and diagnostic detail). Registries cover affected livebirths,
63   II,     9.  1.  2|         after 20 weeks gestation). Registries may cover only diagnoses
64   II,     9.  1.  2|           Full or Associate Member Registries~ ~Maintaining high quality
65   II,     9.  1.  2|      regional rather than national registries, networked nationally and
66   II,     9.  1.  2|    certainly under-ascertained, as registries collecting data on diagnoses
67   II,     9.  1.  2|           2005a). For example, the registries in France and Switzerland,
68   II,     9.  1.  2|         Table 9.1.2.1). Individual registries report prevalence rates
69   II,     9.  1.  2|        shunts for hydrocephalus.~ ~Registries provide syntheses across
70   II,     9.  1.  2|           quality or efficiency of registries: a) full coding of cause
71   II,     9.  3.  1|           EUROCARE~European cancer registries study on cancer patients’
72   II,     9.  4.  3|            older. Data from cancer registries show that contrary to popular
73  III,    10.  3.  1|        through high-quality cancer registries remains a high priority.~ ~
74   IV,    11.  5.  2|       organ procurement societies, registries, projects and studies on
75   IV,    12.  2    |           About one hundred cancer registries operate in Europe today,
76   IV,    12.  2    |          closure of several cancer registries in several countries and
77   IV,    12.  2    |           have also prevented some registries from linking death certificates
78   IV,    12.  5    |    Community initiatives regarding registries on cancer, based, inter
79   IV,    13.  7.  5|        complicate the operation of registries relying on clinician notification
80  Key,   Ap5.  0.  0|       referral~refractive~register~registries~registry~rehabilitation~