Part, Chapter, Paragraph
1 II, 5. 2. 2 | 2007) and population-based registers for morbidity data; WHO-HFA
2 II, 5. 2. 3 | existing population based registers in Europe adopt different
3 II, 5. 2. 3 | information varies and in most registers it is much less intensive
4 II, 5. 2. 5 | programmes, population-based registers and screening programmes.
5 II, 5. 2. 7 | cerebrovascular population-based registers in Europe: are morbidity
6 II, 5. 4. 2 | Some of the best diabetes registers in Europe have adopted innovative
7 II, 5. 4. 2 | programs and/or diabetes registers only cover those diagnosed
8 II, 5. 4. 2 | population-based diabetes registers represents an obvious solution
9 II, 5. 4. 2 | exchange across collaborating registers in Europe (Carinci et al
10 II, 5. 4. 2 | al 2006).~In other cases, registers are client-based, i.e. they
11 II, 5. 4. 2 | clinician.~Client-based registers may provide valuable information
12 II, 5. 4. 2 | information on diabetes.~Registers may become the most accurate
13 II, 5. 4. 2 | there are sophisticated registers in place. Indeed, this fact
14 II, 5. 4. 4 | the absence of validated registers), but also prone to differential
15 II, 5. 4. 7 | among regional diabetes registers. The goal of the project
16 II, 5. 4. 7 | directly by regional diabetes registers, based upon fully documented
17 II, 5. 4. 8 | Benedetti M (2005), Diabetes registers and prevention strategies:
18 II, 5. 5. 1 | 5.5.1.2.1. Registers~ ~There are problems in
19 II, 5. 5. 1 | from hospital discharge registers, not only because coding
20 II, 5. 5. 1 | from hospital discharge registers and annual data collections
21 II, 5. 5. 3 | available from hospital registers and practitioners. Hospital
22 II, 5. 5. 3 | practitioners. Hospital registers and information from practitioners,
23 II, 5. 5. 3 | PR-SP-MS and PP-MS.~ ~MS case registers in ”Europe”~Population-based
24 II, 5. 5. 3 | use of multiple sclerosis registers – EDMUS. Ann Neurol 36(suppl):
25 II, 7. 3. 4 | in the available injury registers is not without controversy
26 II, 7. 5 | hospitalizations (discharge registers), surveillance of external
27 II, 8. 2. 1 | those patients on their registers who have intellectual disabilities,
28 II, 8. 2. 1 | limited sensitivity of the registers, especially towards mild
29 II, 9 | supplement congenital anomaly registers to determine numbers. Trends
30 II, 9. 1. 1 | derived from civil and medical registers of births and deaths, are
31 II, 9. 1. 1 | networks of condition-specific registers.~ ~ ~(C=core, R=recommended,
32 II, 9. 1. 1 | international networks of data registers such as SCPE (European Cerebral
33 II, 9. 1. 1 | criteria used by surveys and registers. To overcome these difficulties,
34 II, 9. 1. 1 | cerebral palsy surveys and registers, SCPE (Surveillance of Cerebral
35 II, 9. 1. 1 | with fewer mild cases in registers from the Southern part of
36 II, 9. 1. 1 | Southern part of Europe than in registers from the Northern part of
37 II, 9. 1. 1 | cerebral palsy surveys and registers. Dev Med Child Neurol 2000;
38 II, 9. 1. 2 | through congenital anomaly registers, and the focus of this section.
39 II, 9. 1. 2 | focus of this section. Many registers also include cases diagnosed
40 II, 9. 1. 2 | included in congenital anomaly registers, but are not included here.
41 II, 9. 1. 2 | population-based congenital anomaly registers, using multiple sources
42 II, 9. 1. 2 | There are currently 38 registers in 20 countries (see Table
43 II, 9. 1. 2 | countries with established registers of congenital anomalies
44 II, 9. 1. 2 | national births covered by registers in each country is shown
45 II, 9. 1. 2 | Europe.~ ~Collaboration of registers within a European network
46 II, 9. 1. 2 | current congenital anomaly registers. The data are limited with
47 II, 9. 1. 2 | Many congenital anomaly registers nevertheless now use HE/
48 II, 9. 1. 2 | Many of the EUROCAT registers belong to ICBDSR also, as
49 II, 9. 1. 2 | well two EU non-EUROCAT registers in Czech Republic and Slovak
50 II, 9. 1. 2 | as represented by EUROCAT registers, the live birth prevalence
51 II, 9. 1. 2 | supplement congenital anomaly registers to determine numbers. Trends
52 II, 9. 1. 2 | and regional funding for registers is insufficient and short-term.
53 II, 9. 1. 2 | spent on congenital anomaly registers by European Union countries.
54 II, 9. 1. 2 | confidentiality (Busby et al, 2005c). Registers in some countries are currently
55 II, 9. 2. 3 | Europe-wide data. Studies and registers are in the process of development,
56 II, 9. 3. 2 | discharge data and medical birth registers to measure severe maternal
57 II, 9. 3. 2 | cerebral palsy surveys and registers. Dev Med Child Neurol 2000;
58 III, 10. 2. 1(12)| Drug-related deaths data come from registers of mortality, which may
59 III, 10. 4. 5 | established inventories or registers of contaminated sites and
60 III, 10. 4. 5 | national level, inventories or registers of contaminated sites represent
61 III, 10. 4. 5 | of 2006, inventories or registers had been established in
62 III, 10. 5. 3 | Member States’ national registers or other national bodies
63 IV, 11. 1. 5 | Sweden, voluntary quality registers were developed for health
64 IV, 11. 1. 5 | as cited in Smith, 2004). Registers are based on clinical specialties -
65 IV, 11. 4 | population or healthcare registers, surveys, epidemiologic
66 IV, 11. 5. 6 | 2003Recom 12 on organ donor registers~2003Recom 10 on xenotransplantation
67 IV, 11. 6. 4 | whereas clinical records and registers are available only for some
68 IV, 12. 2 | programmes, population-based registers and screening programmes.
69 IV, 12. 5 | Population data)~- Disease registers (e. g. cancer, myocardial
70 IV, 13. 6. 2 | with whom the whole family registers for primary care, ensuring
